Saturday, November 17, 2012

World Prematurity Day

Today is World Prematurity Day, a day to honor all preemies around the world who are growing and thriving in their own way, and a day to remember all of the precious babies who lost their fight.  We wore purple in honor of Judith and all of our preemie friends!

I've met some incredible preemie parents over the last 23 1/2 months, most of them through the online forum I'm active in.  Their strength, determination, and support for one another is amazing.  Their babies are true miracles and fighters, and it is so heartwarming to see the progress they make and to watch them grow!

It's days like today when I can take a step back and really be thankful for how well Judith has done, and how much of a fighter she really is.  Granted I can do that every day, but sometimes I get lost in the daily routines and problems of that day and don't realize how far she's truly come.  I think this year has more mixed emotions than last year, because we are about to head into uncharted territory: in a little more than 2 weeks, we'll no longer adjust Judith's age, and the vast majority of her "preemie-ness" will be behind us.  She's almost completely caught up to her actual age.  It will be nice to not have to worry about so many anticipated delays, to be able to focus more on her CF and keeping her healthy, and allow this chapter of her life to come to a close.  I know it's not going to be an instantaneous process, but it still feels kind of strange since it's been such a big part of our lives over the last 2 years.  We certainly won't stop celebrating future World Prematurity Days - being a preemie is part of Judith's identity, and as she grows I want to help her understand that while she had a rough start with many complications, she overcame that and thrived.

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