Monday, March 31, 2014

Spring Is Here... Almost

I really want to jump up and down and scream in excitement that spring is finally here, but the sleet and random snowfall that happened yesterday is holding me back a bit.  Nevertheless, temperatures this week are actually supposed to be right around average, and that is making me happy!  I'm ready to open up the windows, get some fresh air in the house, and hopefully put the germy season behind us.

As some of you know, I substitute teach here and there to pick up some extra cash.  I have to say, that before I had a child with CF, I knew to take some additional precautions to help prevent the spread of germs, but didn't notice a lot of other things.  Now?  I notice EVERYTHING.  I had a couple subbing days last week, and knowing all of the crud that's going around, it made me go into overdrive with precautions!  At the same time, I'm realizing that Judith's going to be going to kindergarten in a few years, and I start thinking about all of the things we should look into for a 504 plan.  Being a music teacher, I know that in the general music classroom stuff is shared all of the time.  It never made me think twice before unless there was an accommodation need for a student, but now I think about all of the things we'll need to try to get in place for Judith to help minimize exposure.  Things like requesting a separate set of materials that aren't handled by everyone, requesting sanitizer be used frequently and encouraging good hand hygiene, that sort of stuff.  Of course there are a host of other issues that we'll have to look at as well.  It's pretty overwhelming thinking about that kind of stuff right now, and we're not really that close to having to work on a 504 plan!

I know the other factor that has my mind racing is Judith's next clinic appointment.  We're only a couple weeks out, and I'm finding that I still get nervous for appointments.  It's the unknowns that kill me: is this the appointment where she'll culture pseudomonas again, and on top of the MRSA?  What's the MRSA doing, and has it become resistant to the bactrim?  Did she gain or lose weight?  What else can we try to get her to eat more than 1 bite of anything?  And on, and on, and on.  It's kind of a weird set of emotions.  Every time I go into an appointment or check feeling really good about stuff, something new pops up.  Every time I go in worried that the other shoe is going to drop, things are just fine.  One comfort is I know I'm not alone with this, because there are other CF moms in a group I'm in that have mentioned they have the same feelings, so I actually feel normal with something for once.

Anyway, back to spring.  I am so, so, SO glad that the snow is finally gone!  There are still some isolated piles that look absolutely disgusting hanging around, but not many, and I'd be willing to bet that the weekend's heavy rainfall took care of a lot of that.  We're going to be able to start going to the playgrounds again, and won't be forced to be cooped up in the house as often.  Easter is also coming, and that means egg hunts!  Last year Judith did relatively well at the hunt at my parents' church, and I'm excited to see how she does this year now that she's starting to understand things a little more.  Her Easter/spring shoes for church are ordered and shipped over the weekend, and I need to get her Easter dress from last year out of the closet and check the hem on it to see if it needs to be let down so it's ready for this year.  I'm sure I'm probably more excited about a lot of this than Judith is, but I think this year is going to be a really fun year because of how animated she is most of the time!

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