Thursday, January 1, 2015

Happy New Year!

From our family to yours, we want to wish all of you a safe, happy, and healthy 2015!

Reflecting back on the last year, we've definitely had some ups and downs.  The biggest kicks in the pants were Judith needing the second clean out in July, and the situation with the former buyer for our house.  Feeling like we've been living in a museum and not getting a lot of results with our house for months was frustrating, and frankly still is frustrating, but with the new year upon us we're hoping that things will move quickly and we can get this house sold.  There were so many positives as well, though: being able to go to parent support group meetings for our clinic and chatting with the other parents there; the Great Strides walk last May; Judith getting a vest machine that is working much better for her; and seeing her make some great gains with weight back in October.

2015 holds a lot of hope and anticipation for us.  Obviously selling our house is a big one.  The CF community is anticipating the approval of VX-809 for people with 2 copies of DF508, and the studies continue to progress with VX-661.  The big renovations at our church are expected to start soon, and while it's going to mean a lot of dust for a while, the changes and updates are really exciting!  And next fall, Judith will hopefully go to preschool so she can get a better handle on the social skills she'll need for kindergarten.

The odds of us being busier than normal this year are good, but that's ok.  If this year can be better than last year, I'll call it a win.

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