As CF Awareness Month comes to a close, I want to offer a final thought that I feel is important for people to remember.
CF patients may not “look that sick,” but please keep in mind that a ton of work goes into keeping our children (or themselves for adults and older teens) as healthy as they possibly can be. CF is a progressive disease, and as another CF mom puts it, it’s a “365 days a year, 24 hours a day” thing, and “there’s no remission or vacation from CF.” Family, friends, loved ones, and the CF care team are in it for the patient so they can have a full life, with as many typical experiences as they can. So while we do have a month where advocacy and awareness happen more frequently, remember that for those living with the disease and for the families affected by it, awareness and advocacy also happens throughout the year and doesn't end because the calendar flips to June 1.
If you would like to read more about CF or treatments, therapies, and other aspects of the disease that I didn’t touch on throughout the month, please visit www.cff.org and click on any of the categories at the top of the page or on the home page.